Casen Buswell was diagnosed with a genetic disorder where plaque builds up in his vascular system. According to his family, there are only 13 other cases in the world. However Casen is only 1 of 2 with a double deletion.
After Casen’s medical file was sent around the world, the family found a doctor in Belgium who has seen other patients with the same disorder.
Casen’s family hopes to raise enough money at the fundraisers to take him to see the doctor.